Posts tagged ‘neurodiversity’

Which Witch-y Niche Shall I Pitch?

So this isn’t a for sure thing yet, but Anne Newkirk Niven of Witches & Pagans has asked me to blog for their website. I just need to come up with a main topic/theme to write about. She was up front with me that it’s not a paid gig, they just ask for at minimum a monthly post- but I will get a subscription to the magazine, which is probably more than I would get writing for Patheos- though I could certainly write for both. I started a Patraeon account, but haven’t made the “pitch” video for it yet,  as I could use some tech help with it (I am sure with my geeky social network, I can find *someone* to help with that! I’d like to get that set up if/when my column on W & P launches. I am also looking at how other bloggers use Patraeon to get an idea of how to use it. And in addition to blogging I do other types of unpaid work in the community (like serving on the Bisexual Organizing Project board) so this is way for people who appreciate my work to give back.

So here’s my idea that I pitched to Anne in an e-mail-

“I’m still thinking of a title and description, but I’m thinking of doing a blog that is about neurodiversity and how it relates to Paganism- I’ll talk about how to adapt practices to different learning styles, be inclusive of people with different kinds of “mental wiring” (AD/HD, autism, dyslexia etc) even how particular mythic & historic roles and archetypes- like witch, seer, trickster/fool, bard can be incorporated into a personal path. I follow a Druid/Heathen path, but I reach a broad audience with my blog, and get feedback from people of many different backgrounds, so I can create content that will be accessible to the diverse needs of Witches & Pagans.”

Other ideas: Paganism in interfaith/multicultural contexts, queer spirituality, the Approaching Paganism series..

I haven’t heard back from her yet, but I just was communicating with her yesterday, and she’s understandably a busy lady. (There are only 3 staff working for BBI Media!) So in the meantime my dear readers let me know if you have any suggestions.

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July 2, 2015 at 6:10 pm 1 comment

Improving Online Mental Health Self-Help Culture

Online mental health self-help culture has its pros and cons-  most of these are also true of other medical conditions and disabilities- particularly ones that are less well-understood or acknowledged by mainstream health care professionals and institutions. These are some observations I’ve made after long-time participation in autistic adult & neurodiversity communities. Note that I am far more familiar with helping adults with autism & parents of kids with autism than say, people who have bipolar disorder or schizophrenia.

Pros:

* Spread of good information about mental health, self-help techniques, both mainstream & alternative mental health resources

*More access to information & support particularly for people in under-served populations- uninsured, low-income/working-class people, people of color, GLBTQ individuals, folks with disabilities in addition to mental health issues, people in countries or regions that have minimal or non-existent mental health care

*People finding community, sometimes pride in neurodivergent, mad, disabled and queer identities.

*More understanding for family, friends, community members and mental health professionals

*Advice on how to navigate healthcare/social service/education bureaucracies, and less conventional ways of accessing basic needs (barter, sharing, crowd-funding)

*Peer supported/confirmed self-diagnoses for people who might have a harder time accessing formal diagnosis. Sometimes a person later gets an official diagnosis, services and accommodations.

Cons:

*Spread of bad information on mental health, ineffective or inappropriate self-help techniques (either for everyone or for specific individuals) Framing either mainstream or alternative mental health structures/techniques as either 100% good or bad.

*Professionals & family members who are otherwise unaware of the broad range of mental health self-help communities may see more extreme factions and assume they are representative of the whole. But this is a problem with every subculture, internet or otherwise- especially if something is either unfamiliar or someone is already prejudiced against it, they will pick the most extreme version of it, and that’s the part that becomes most well known, even if it’s a small minority. (This is why respectability politics never works!) And if some part of the media gets involved, well St. Dymphna help us!

*False self-diagnoses that lead to a person to engage in self-help and self-medicating that harms them, spreads inaccurate information about a condition to others. (I’d add “uses self-diagnosis as an excuse- but those of us with official diagnoses are so frequently told that “we’re just using X as an excuse, it’s all in your head, not real, that didn’t exist in my day, blah blah” that quite frankly I doubt that many people specifically seek neurodivergent labels for themselves while knowing they are not accurate. Yes, sometimes there are hypochondriacs or maybe even trolls that try to infiltrate communities. But this is not something people seek out to be “cool”.

*Confusion by both participants and outsiders between  identities and subcultures perceived as unusual/eccentric- such as- otherkin, multiple systems, various alternative spiritual beliefs & practices, gender & sexual minorities that *do not* by themselves indicate a person having mental distress issues vs. assuming that if this person claims this identity they must necessarily be mentally ill, add extra stigma helping.

How to we increase positive results of our communities while reducing negative results?

*Self-care and knowing your limits- do what you need to do to take care of yourself, mentally, physically, emotionally and spiritually. If that means taking a break from these communities- both online and in-person support groups, fine!

*Figure out clear boundaries for what you are and aren’t willing to do to help others- a therapist can help with this.

*Get out and be social, hang out with people who are supportive but don’t have mental health/substance abuse issues themselves

*Get lay-level training about how to deal with mental health crisis- both for yourself and others from orgs like National Alliance for the Mentally Ill (NAMI) Note: I know some of my fellow activists don’t care for NAMI- I am just suggesting them as a baseline, you don’t necessarily have to agree with them on everything to learn from them.

*Suggest and redirect people towards groups that focus on resources in their area (I’ve often encountered pleas like “I’m about to become homeless/lose X type of benefits etc” from people without them telling us where in the United States they are, let alone where on the entire frickin’ planet!

*Encourage people to seek out in-person help in their local area, and not wait til things have gotten to an emergency level (or what they perceive as an emergency!)

*Recognize when/if you have a Savior/Martyr/Compulsive Parent Figure Who Must Help/Adopt all the Lost Puppies & Orphans type mentality. Helping people is a wonderful thing! It can also become an addictive and dysfunctional behavior!

*Learn about Minority Stress Theory, and particular issues facing various minority groups that can affect them while accessing mental health care. Learn about different cultural views of mental health

*Share information about how to get professional help, while being understanding of concerns people may have about doing so.

*Moderators of different communities/fora should talk to each other to share information about problematic individuals. Even if some of their behavior is related to their mental health or neurodivergence, that is not an excuse for breaking rules that are clearly stated, being disruptive, or harassing and bullying other people. Hence why, in these communities in particular to clear rules that all participants agree to, and steady & active moderation. Confidentiality is also a must.

May 30, 2015 at 3:05 am Leave a comment

Thinking Creatively about Ancestors

(Belated post) Happy Samhain, and Happy Halloween! Today I will mostly be celebrating Halloween, American-style, feeding the munchkins that come to the door, and playing board games with my partner & his brother. This weekend and next, I’ll be attending 2 different Samhain events. This is the time of year when we focus on honoring the dead, and I often hear from people of various paths, that find this to be a stumbling block. Often this is because they had (or still have) difficult, painful and abusive relationships with their family members, both living and dead (or the dead are “guilty” by association with the living relatives). This has often been a topic of discussion on the ADF lists, and people who were adopted often express awkwardness surround this. I am lucky in that I have a great relationship with my own family and a cordial one with my partner’s family.

Adoptive Family– if you were formally adopted, your adoptive family’s ancestors are yours. Adoption (especially by relatives) did happen in various ancient cultures, and all those stories about foundlings and orphans being adopted are not just stories 😉 Informal “adopted” parents, grandparents and aunts & uncles can also be honored. Search for your birth parents & ancestors if you so desire, but remember that it is not required to feel like a “Real Pagan”. If you were adopted from another country or ethnic background than that of your adopted family, adding symbols of that country or culture to a physical or online shrine and honoring cultural ancestors would be good ways to honor your heritage.

Ancestors by Marriage/Partnership– Your partner or spouse’s ancestors are also your own. Personally I find this can be a nice way to share one’s spirituality with a non-Pagan spouse and even their broader living family- you can gather pictures and mementos together to create an ancestor altar, without announcing to everyone that This is a Pagan Thing! It’s not just a Pagan Thing! Many cultures and religions honor their ancestors, and respectfully listen and learn if your partner’s family has its own ancestor-honoring traditions- Jewish, Mexican Catholic, Chinese Confucian, etc.

Spiritual Ancestors– in some traditions such as Feri, they are referred to as “the Mighty Dead” founders or influential practitioners of your tradition, or other thinkers that have been influential on your path. They can be part of a recent revival, or priests and shamans of long ago. This is a good category to focus on in ritual, since our groups are usually made up on unrelated people. Many people also see their coven, grove et al as being like a family.

Ancestors of Place– people who lived before you in your house, the land it sits on, the general area. This may blur with non-human spirits of place as well.  In the U.S. and other colonized lands we often find it easier to acknowledge and honor European founders of our cities and countries, while steering clear of discussing the many victims of genocide and forced relocation. Understandably, if some of these spirits are present they may be angry with us. I’ll expand on this another time, as we get closer to Thanksgiving, but in short, dwelling on guilt is pointless, but acknowledging the wrong-doing of the past is important. I think what would be best in honoring these spirits, is to pray for healing and reconciliation between Native and non-Native peoples. Do not say prayers that “thank” the Native peoples for the land, when it was not much of choice for them to sell it. I would also suggest avoiding doing rituals near or on Native American burial grounds.

Ancestors of Trade/Profession/Calling– if you have a trade or profession, be it mundane, spiritual or a combination, you can honor deceased accomplished members of that trade, along with patron gods or saints, or perhaps the founder(s) of the company or organization you work for, or your union/trade association. Honoring activists of the labor movement would also be cool- I think this category would be even more appropriate for Labor Day (in September in the U.S.) or May Day, or a special day associated with your profession. If you are a student, trainee, or job-seeker of a particular field, you can also honor people of related professions. You can also honor deceased alumni of your college or high school, if you feel a special attachment to the school, especially at homecoming.

Queer Ancestors– If you identify as queer, GLBTQA+, or otherwise have an interest in queer history, cultures and civil rights, there are all kinds of cool people throughout history you can honor. Something to keep in mind however, is that the concepts of sexual orientation and transgender/transsexual are modern constructs, however gender fluidity/nonconformity and same-sex love and sexual behavior have existed throughout human history throughout the world. This is another reason I like the word “queer”- it is inclusive of anyone who has a relationship or gender identity that does not fit with the norm. Pinterest shrine here. Nornoriel has an inspiring tribute to Harvey Milk (one of the first openly gay politicians in the U.S.)

Disabled and Neurodiverse Ancestors– as with queer history, the history of people with disabilities is also quite hidden, there are many famous people who had disabilities that we don’t talk about, and people who are not remembered because they were shut out of society in institutions. (Sometimes even members of our own families!) “Neurodiversity is an approach to learning and disability that suggests that diverse neurological conditions appear as a result of normal variations in the human genome.”-Wikipedia I like to use the term neurodiverse, because there are many historical figures that people try to post-humously “diagnose” with various mental conditions such as Asperger’s Syndrome or bipolar disorder, and while we can make educated guesses we will never really know the truth. Thus we can include people with various diverse ways of thinking without giving them a specific label. Pinterest shrine here, Nornoriel has a lovely tribute to Helen Keller here.

Deities as Ancestors– Last but not least, in many traditions deities are our literal or metaphorical ancestors, and specific deities are said to be the ancestors of particular countries, tribes and clans. Illustrious ancestors are also often deified, or at least get a hero or saint-like status.

See Tutelary Goddesses post

Some people will of course fit into multiple categories! I will be writing more posts about these groups of ancestors, and individual ancestors as the Muses move me, and adding to the shrines, while trying (probably in vain) to not get too sucked into Pinterest!

October 31, 2014 at 10:40 pm 2 comments

Helpful Videos on Autism and Disability

Thanks to Youtube, educating yourself about the autism spectrum and disability in general is easier than ever! Be warned that there also a lot of bad info online so be careful- avoid anything with language like “epidemic” “tragedy”, find things from the perspectives of people with disabilities themselves rather than people who claim to speak for us! Note: I tried to put this roughly in an order of basic to more complex ideas about autism and disabilities.

How Aspies Communicate: Literal Thinking & Bluntness

Ask an Autistic: What is a Meltdown?

Can We Stop Saying “High-functioning”? What are the problems with using high vs. low-functioning autism labels?

Ask an Autistic: What is Neurodiversity? Truths & misconceptions about the neurodiversity movement. Lots of links listed below video!

Undiagnosed Autism/Asperger’s in Adults– It’s often misunderstood that autism is a new “epidemic” when actually people with autism have existed all along, often struggling to get by. I feel all too this goes ignored by the broader autism community that is very child-centric.

Sh!t People Say to People with Disabilities and here’s a 2nd

S#!T Ignorant People Say to Autistics– Danger: satire and truth ahead!

Stella Young on Inspiration Porn & Objectification of Disability– Stella Young wittily explains how we have all been mislead (heck, lied to!) in our understanding of disabilities. (This is not literally about pornography)

Autistics Speaking: Self Advocacy in a Culture of Cure (Part 2 here)

Jo Case on Asperger’s Syndrome: Identity or Illness– a woman with AS with a son with AS explores changing views of the autism spectrum.

Ask an Autistic: What’s Wrong with Autism Speaks? Why many autistic people and their allies oppose Autism Speaks

October 20, 2014 at 11:23 pm Leave a comment


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